I made tinnitus my friend, then it disappeared [video]
Discussion 69 comments
Mine is high pitched, and varries in intensity but has gotten worse lately. Sometimes it makes jus existing down right hard, but usually it's only moderately annoying and I can mostly ignore it.
I've tried an assortment of sound based methods to mask it or train my brain to tune it out, but nothing has worked more than fleetingly.
The only thing that reliably gives me a break is if I can really focus on something. Music (passive or active), cooking, and programming are the most reliable, but sometimes reading, gaming, or good conversation works. Usually, though, everything is done with a constant backing track of flyback transformer whine.
Wear hearing protection, kids, or you may well live to regret it!
It was text back then but nowadays there are videos. Here's an example: https://www.youtube.com/shorts/YyT9ZwWy5Jc
About 3 years ago I used a borescope and some tweezers as a sketchy endoscope and pulled out a hair that had somehow wedged itself in my ear canal. I don't recall how I figured out this plan, but it worked. The tinnitus has never returned since then.
I have no idea whether there's any causal connections between any of these events. It's a big mystery. But TBH I don't really care that much, I'm just super glad it's gone.
what the author is advocating for "befriending tinnitus" is a well established form of therapy (Acceptance and Commitment/ACT), it's generally very effective because avoidance or compensatory behavior ("trying to make the tinnitus go away / distract myself") is teaching the brain that tinnitus is a problem and is only going to increase the kind of alertness that leads people to focus on their tinnitus. It's the same way with insomnia, people who try to produce sleep efforts tend to worsen their insomnia, you need to befriend being awake.
There's a big psychological component to tinnitus that sustains itself because people view tinnitus as a problem, that's often larger than the physical impairment.
For myself, I noticed that observing it cheerfully, like “oh, hey, little whining sound!” makes it disappear into the background and I stop noticing it.
Ostensibly mine is from high frequency hearing loss, which I absolutely have, but I now wear hearing aids and it has no measurable impact from my point of view.
I take comfort in that I can go long periods of time without noticing it, and I know that even though I'm focused on it now and it's loud, it will slowly drift to the background and below conscious notice before too long.
I certainly don't befriend it, but I when I notice it, I acknowledge that I notice it and move on with whatever I'm doing. Eventually I'll notice again, days or weeks later and realize I hadn't noticed it at all in the intervening time. So I just relax and move on.
It's never disappeared, but the "rain on a tent" sounds from mynoise.net, fan noise, and having a Twitch stream on in the background masks it enough that it's not bothersome during the day.
"Befriending" it though? Naah, I don't think so.
I have high pitched 7k hz bi-lateral ringing, 24x7. I've had it my whole life. I am convinced part of it is due to being born very premature (I was 1 lb 11 1/2 ounces). I believe it may be cervical and/or neurological (vascular, specifically).
It's so frustrating because nothing has happened. Masking only does so much. Sitting around reading a book, or trying to sleep is almost impossible.
I've been wanting to make a documentary style video on this diagnosis/issue, because a more people suffer like this than people realize. One medical professional that was helping me passed away a few years ago and that still eats away at me, because he really cared that he wasn't able to help me and it ate away at him. I still miss him.
It looks like good old fashioned jQuery, so I'm surprised your browser doesn't like it, but it looks like the direct link for the video inside the iframe is https://iframe.mediadelivery.net/embed/570723/69b827da-0ce9-...
Later I switched to Bone Conduction headphones. I felt like BC Headphones has improved my condition a lot. No ear pain or puss or the humming noise. I hope it stays that way!
The solution is to not wear them as long, especially right after a shower or the like, when there is extra moisture in your ear.
Alternatively you can put alcohol in your ears to kill the bacteria, sort of like you’d do with mouthwash. Any pharmacy will sell over the counter ear drops with alcohol, meant for drying out swimmers ear. You’d have to keep doing it once every week or two, but it would keep the infection away.
What's weird is sometimes I wake up and then all of the sudden I hear it starting.
tinnitus also happens to be a very predictable signal, so the key is to convince your brain that it's noise to be filtered out. if you focus on it you will convince your brain of the opposite.
At the risk of a kind of odd tangent, I had a very weird experience a couple years ago where I woke up one morning and my entire body felt like it was "external" to my feeling, for lack of a better description. Getting up and walking around made me feel queasy because I could feel everything in my abdomen sloshing around, and lying sideways made me feel what I assume is how claustrophobic people feel in tight spaces because it felt like there were multiple surfaces around me instead of just the one I was lying on. I had severe brain fog to go along with it; the words coming out of my mouth felt like what I wanted to say, but it didn't feel like I was choosing them; normally my speech feels almost like a distillation of my thought process, but this felt like they were just spontaneously coming out without any thought process to generate them. My wife (still my fiancee at the time, but we had been together for several years) apparently couldn't tell anything different about me outwardly and said she wouldn't have been able to tell anything was wrong other than what I was telling her. The sensation didn't last all day, but after it left I had an odd numbness everywhere. The numbness was gone by the next morning too, but a couple weeks later the brain fog and numbness came back (albeit not quite as strong as it had been originally), and it's only been gradually fading away since then.
The experience (and the later experience that's still going on for a while now) has made me realize just how much my perception previously had been, let's say, "curated" by mind. One thing I've noticed is that even when the physical sensation isn't present, the "reaction" to the sensation will still occur. For example, I remember a time when I was shoveling large amounts of snow, and I suddenly noticed that I was taking large amounts of time between each shovelful, which had been happening instinctively due to how much I needed to catch my breath, but even then I still didn't physically feel tired or winded. Plenty of times I've woken up somewhat earlier than usual and tried to get back to sleep but not been able to, and eventually I realized there must be reason, so I'd have to actively think about whether I was thirsty or hungry or needed to use the bathroom, and then suddenly realized that one of them was actually the case. Pain is one of the weirdest cases, even with my numbness being a lot more mild than it was for the first year or so, because I still have the reflex that I'd expect from a sudden severe pain even if I don't feel it nearly as strongly.
I don't know for sure how much of this generalizes to everyone else, but the experience has definitely made me reconsider some cognitive theories that didn't seem plausible to me before. The idea that our brain basically tricks us into "remembering" feeling something as the reason for us taking a certain action seems pretty consistent with how I was would act the same way in circumstances where I normally would expect to have sensations causing me to act that way without being able to actually feel the sensation. In some ways the philosophical idea of consciousness being an illusion don't seem as crazy to me as before either, because it's clear that the reality I experience is only perceived through the lens of my biology, and I can't come up with a strong argument against the idea that my sense of "self" is just an evolutionary hack for handling some parts of my body (with the parts not benefiting from conscious management being actively hidden from whatever part of me feels like "me").
It's unfortunate and surprising that there's still no effective drug, though lidocaine does, in fact, work. (Very temporarily, sadly.)
And time does help, at least sometimes. Over the past ten years, my tinnitus has gone from a 5/10 (highly annoying and noticeable above ambient noise, but not debilitating in any respect,) to something like a 1/10 (I don't even hear it unless I'm in an extremely quiet room and trying to sleep).
...But it sure ain't my friend, and never will be. It's hard to interpret it as anything but an annoying side-effect of self-inflicted nerve damage.
I know what a variety of tinnitus is like (I've never known anything else) and I'm sure that other varieties can be horrendous. In my case time does not help.
Perhaps we ought to insist on a tinnitus spectrum, with multiple dimensions and some TLAs. I don't think that advice from a single data point is very helpful, or being charitable: annecdata. I'm glad it disappeared for OP.
Tinnitus ranges from, say, me (I'll live) through yourself (fuck! but I'll live) to committing suicide in despair at the extreme end.
ENT: Ear, Nose and Throat - a medical specialism.
My earliest memories are from around 18 months. I used to have very bad earache whenever I had a cold or influenza. My mother told me that I used to burst into tears, unprovoked or without any of the usual baby related reasons and eventually around age five or six I was diagnosed with "glue ear".
The way it was explained to me was: my eustacian tubes were too narrow. Speaking to children: "Your ears, nose and throat are all linked together and the tubes that link your ears to the rest of you are too small and get blocked easily".
I had surgery to insert "grommets" into my eustacian tubes. This was done twice. Grommets are tiny plastic, hollow tubes. From memory: about 3mm long and 3mm outer diameter but that is from a long time ago.
Now here is where it gets complicated! My dad was in the British army (so was my mum but that's another story). This means we moved house every two years or so. I can fix dates quite well.
The first operation was performed in Rinteln, West Germany at a British Forces hospital. We were stationed in Paderborn so it would be around 1976. I had a second set inserted in Wythenshawe Hospital in Manchester (UK) in 1977 or perhaps early 1978.
I know that the second set of grommets were removed by a doctor (I think an ENT specialist) but I can't remember if the first set were removed in Manchester and replaced by the second pair at the same time.
I recall that the doctor used a black, plastic, bell shaped thing that fitted over my ear and wiggled some sort of hooked, metal probe within my ear to pull out the grommets. It was quite painful.
Even after the operations, I still got earache whenever I had a cold up until around age 20-25. That age range is a bit hard to pin down. I'll also note that when we were stationed in Cyprus in 1986-7ish, a lot of swimming and diving helped clear the tubes!
One of the nasty side effects of glue ear is that you have trouble with pressure changes. Airliners and swimming are the bane of your life.
There are some notes. Hope it helps.
There's some research, but yeah, I'm surprised that something that affects so many people and in some cases affect them very severely isn't receiving more attention.
At least there are things one can do immediately after the fact to limit nerve damage (applying intratympanic steroids etc), but even these things are often missed and haven't become part of routine procedure yet.
And I'm very curious why Shore's device is still stuck in FDA hell while the (from what I've heard) inferior version, Lenire, passed a long time ago.
I'll be honest, this is the first time I'm hearing "just change your attitude towards it" though. It's like the terrible advice someone with depression gets- just be happy!
I have it. I've changed my attitude toward it and made it my friend. I don't really know what else to tell you, but if you want to, the way is open for you. Or you can continue to see it as an aversive thing, and it will continue to be so.
No amount of wishing it away is going to make it vanish in the same way if I really want to fly I just need to think I am a bird... at least in theory. ;)
It doesn't mean you have to be happy with it but just accept it, bring it out like a photo album of the family. 'Here is my tinnitus, it stays past its welcome but keeps me company.' 'There is my balding, society considered it ugly, I think it is just neat.'. 'Oh the knee that wants to play up every once in a while, yeah that happens, we work with it the best we can.'
I have no idea how it happened - I never used headphones much, I don't work around machines or jet engines, etc. One doctor said it's just wear and tear.
It doesn't bother me though. I figure that nobody has a full stack of bricks when it comes to health, and here's one of the places I'm short. Compared to some of the places where other folks have health problems, this is not a biggie.
There's also that surgery where they sever your auditory nerve and render you deaf. Some have done this in an extreme last-ditch effort to cure their tinnitus. Sadly, it doesn't always work -- many of those who tried became deaf and yet remained stuck with tinnitus.
There are various professionally provided therapies of this style, but there are also simple self-therapy apps that find the perceived frequencies and then play white noise or a music library with the sound adjusted to produce the notched effect in that small frequency window. For example: https://audionotch.com/ https://www.tinnitusnotch.com/ https://www.tinnaway.com/
Ever since I got better earplugs and kept them on my keyring for more routine use, the symptoms have dissipated over time
Not going to name a brand since aficionados all have opinions about their deficiencies in favor of another brand thats equally open to debate
But I’m glad my tinnitus symptoms haven't seemed to be permanent
I haven't had ringing after music festivals in years now, and I can hear people again in loud environments
Funnily enough I only just remembered it because of this post and yes the crickets are still there. Thanks for that OP.
How Golden Is Silence, Actually?
I cannot change them so I don't worry about them, they are just little my little floating jelly blobs friends that visit when I am at my computer.
There is no scientific consensus on it!
Although I doubt there's any harm in eating more fruit.
What I haven't seen is any properly controlled study proving it false. Just a cluster of researchers in Tiawan with flawed study construction.
https://www.mcgill.ca/oss/article/health-and-nutrition/pinea...
It's mentioned when tinnitus comes up, or when dark mode isn't available. Couple months ago, someone recommended a supplement that it seems could easily(?) be DIY'd in case it's snake oil (even if it's more expensive, then they don't "win"!) :)
https://hn.algolia.com/?dateRange=all&page=0&prefix=false&qu...